You Are Not Alone: Caring for Those with Long-term Dementia

Caring for a loved one with dementia is an act of deep love — but it can also be one of the hardest journeys a family will walk together. In Nunavut, where Elders are often sent far from home for care, the challenges are even greater. Many caregivers face long distances, limited medical services, language barriers, and the emotional weight of watching someone they love change in ways they cannot control.

You Are Not Alone was created to honour those caregivers and to let them know their stories matter. In this report, Inuit from communities across all three regions of Nunavut — and those caring for family in the South — share their experiences openly and honestly. They speak about the long nights, the moments of frustration, the small joys, and the cultural strength that keeps them going. Their voices remind us that while the work is heavy, no caregiver should have to carry it alone.

This resource is more than a report. It’s a collection of real-life experiences, practical tips, community contacts, and encouragement for anyone who is supporting a loved one living with dementia. It also calls on decision-makers to bring more services and supports into our communities, so Elders can age with dignity, close to home, surrounded by the people and places they know best.

If you are a caregiver — or love someone who is — we hope this report helps you feel seen, supported, and reminded: you are not alone.

Amautiit thanks each person who contributed to this important work, especially those who agreed to be interviewed and photographed.

• Jack Anawak
• Syula Bobinski
• Selma Eccles
• Hanna Kilabuk
• Kitty Markwell
• Patty Qamukkaq
• MaryAnn Tatuinee
• ᑐᐊᑦᑎ ᑐᑦᑐ

Additional thanks to Service Canada and the team at New Horizons for Seniors Program for our funding to complete this project.

Read the full report here in English and Inuktitut.